Showing posts with label Alzheimer's. Show all posts
Showing posts with label Alzheimer's. Show all posts

Thursday, 13 June 2019

Understanding how to meet 50/50 with Infirm individuals

Let us understand the meaning of Infirm according to Chief Inspector Google

'The adjective infirm is most often used to talk about elderly people whose bodies don't work as well as they used to ...' Each and every one of us lead different day to day lives. Some live in the fast lane, others in a more relaxed lane, some live in a highly stressed world while others live in a quiet, undisturbed world with perhaps a radio on for company or perhaps even television as their only form of human contact. Some who live in the latter world can be heard to say, the programmes they watch and the people therein almost become like 'friends' albeit through a screen, this is mainly because they may rarely see other humans through the day or perhaps even for days on end. Or they may have formed a 'window relationship' with a feathery friend such as Robin, or a Thrush or perhaps even a Magpie who lands on a specific spot in their garden or on a nearby tree. Whichever way, their world is often 100 percent slower than those who are younger, or family members who work, or who are busy running after younger family members.




Many who live in a slower world feel frustrated, useless but more importantly, they can, in time, feel they are just being a plain nuisance. All these demoralising thoughts can be the root cause of the frustration or be the reason why they do not contact family members or friends from the past who may still be active or lead busy lives.

Sometimes, the above can also be the main reasons why they choose not to go out, or perhaps numerous falls have made them  lose their confidence to walk even just a few paces, often resulting in a form of fear, or perhaps a fear to cook, or to take those few paces to the tap for a glass of water. Or perhaps they are frightened to drink too much water or indeed to eat too much just in case they have an accident, which they are perhaps not fit enough to tidy up afterwards, resulting again in a massive dent to their inner pride or self esteem or to put it bluntly the embarrassment that such accidents can cause.

Whichever way one looks at it, becoming frail or infirm or aged is a massively difficult stage to not only accept but to adjust to, some never do adjust and others accept it gracefully and others do adjust given time and a mass of understanding from family members and friends.

The one thing we all often forget is for many decades the individuals, who suffer from such conditions mentioned above, spent many a year looking after their juniors, giving them a roof over their heads, food on the table, even when times were perhaps difficult, but one thing for sure is, nine times out of ten, they will always have put their family first before themselves and done the best they possibly could have done for them no matter the circumstances or the personal issues they may have been quietly experiencing themselves.

Think back to when you were a child, your parent/parents spoke to you in a language you understood, they played games that your age could cope with such as kicking a ball, riding a bike or just simple snap! or they took you to events that suited you, no matter whether you were 2, 7,9, or 18 years of age. So using this simple lesson that they showed us for quite a number of years how should we communicate and treat them?

We need to mirror image their lives, with slow encouragement with things that perhaps made them feel good when they were younger, for example, tidy hair or a hint of aftershave/[erfume. It's almost cruel to go into a calm home like a whirlwind in a china shop and expect them to get up, stand up and walk within 2 minutes of entering especially if they are mostly chair bound or do not move for most of the day. Often their bones are brittle and their muscles sore, their heads have often been still for most of the day so moving fast can make them giddy and dizzy.

Another thing to remember is that multiple forms of medication can make the taste buds change resulting in some foods tasting horrible or bland but can also result in certain foods making the individual feel constipated. So, in other words, their favoured meal of decades ago may have been mince and potatoes but this can change, so don't be frightened to try some savoury foods or some simple cooled down lime and crushed ginger cordial instead of tea or coffee.

So here are some simple suggestions that will make things easier and reduce much of the frustration that all family members and friends can feel.

1 Make sure you have an hour to spare.

2 Leave your fast world on their doorstep and pick it up when you leave.

3 Sense their mood and adjust accordingly.

4 Share a cup of something and a nibble with them (humans are social eaters/drinkers) this will increase their liquid and food intake at the same time. 

5 If they doze off, let them, just quietly leave the room and quietly potter in their kitchen popping your head round the door every so often to see if they have come back from their 'power nap'. Often humans feel much more relaxed when someone is with them, so consider their nap a compliment to you visiting them. 

6 Put yourself in their shoes, talk about what they see out of their window, or what makes them feel good. Boost their morale by instilling the importance of their existence albeit their wisdom they pass on to you, your family and any carers that may have to be present on a daily basis. 

7 Take some music along, or some old photographs to leave on their table for their memory bank to be reunited with their past of which many can be lost in the long hours of each day. Remember always that a day in their life can seem like a full month of you being awake, leaving each day to be endless and long-winded. 

8 Don't feel obliged to speak all the time, just sharing half an hour of their silent world can be as important for them as well as much less tiring.

9 Ask them how their carers are, as they can often seem like family members to them, purely due to the fact that they see your relative on a regular basis. Make sure that they are happy with each Carer, and if they are not then DO NOT HESITATE to do your own investigations or insist that a Carer your relative has issues with is changed to someone more compatible. Make sure Carers are also able to adjust to your relatives 'slow' mode and that their weaker sides, or weaker joints are handled with extreme care. In saying this, sadly many staff who work for Care Companies are working against the clock so there can sometimes be a tendency to rush everything leading to frustration and temper changes in your relative. Question serious behavioural changes as this may not be down to the sufferer but instead down to rough handling or too much speed. 

10 If you are employing a Carer, make sure they are compatible with your relative and that there is some interest in common or that the potential Carer has the ability to sense what your relative desires or needs to make them feel good or to hold on to their dignity. 

11 Ultimately always allow the sufferer to have their voice and try not to finish off their sentence for them and try to deter Carers from doing the same.

12 If your friend or relative has had a stroke remember that their nerve endings on the paralysed side can feel electrically static or as sore as a red raw wound so handle these specific joints slowly and gently with perhaps some padding between your hand and their limbs. The paralysed side can also feel cold or have the same sensation as shingles and to ease this discomfort or coldness a warm cashmere or soft shawl or blanket gently placed on the paralysed side can help greatly.

13 Many local Craft Groups create Twiddle Muffs or a Twiddle blanket so investing in one of these can also be a great soother.


 Twiddle Muff link


14 As age or health takes over remember, even if they are asleep or in a coma, subconsciously they can still hear you and feel that stroke of a hand or that kiss on the forehead.

15 Always remember that one day you might not have your wonderful relative/friend, who is filled with bookfuls of wisdom, to visit so treasure every moment. 

On behalf of millions of humans and living creatures who have not been or who are not given 50/50 communication - thank you for taking the time to read this brief post. 







Wednesday, 26 April 2017

The habits that irritate many - fiddling, tapping feet, swinging on chairs . .

How many of you find the continual tapping of a foot or the swinging on a chair, the fiddling of fingers or the continual tapping of a pencil end on a desk so irritating that you end up shouting at the individual, when in some cases it is not actually the individuals fault.

Pencil tapping

Millions of children all over the world are repeatedly asked to stop fiddling, often because this can disrupt the whole class of kids and the Teacher(s), or because it seems to have become a 'habit' that irritates those close to them for example:



  • Sitting at a table
  • Waiting for a bus
  • Waiting for a meal to arrive
  • At the school desk
  • On a school bus
  • On a  school trip
  • Watching something on T.V.
  • Sitting in the car on a long journey
  • Sitting in 'what seems to them as' boring Company
Often the above are considered rude, inconsiderate and extremely distracting or irritating for others and for some this irritating habit can sadly often result in detention. 

However, as much as these habits seem to be an irritant, actually they are methods that allow some individuals to concentrate, quite the reverse to the thoughts of many. 

This Link connects you to a Website called  Brain Highways if you scroll down to the second page and to the word proprioception, double click it, and sit back and listen to the children's point of view.

So, what does 'proprioception' mean, thanks to Wikipedia: 

"one's own", "individual", and capio, capere, to take or grasp, is the sense of the relative position of neighbouring parts of the body and strength of effort being employed in movement.

On behalf of those who have a tendency to fiddle or irritatingly tap, please give them a chance and try to understand how their train of thought works in a situation that is often required for them to concentrate. Granted, there are some people who do just do this out of annoyance, but in many cases individuals need to move a limb or to feel the sensation of moving which in turn allows them to concentrate. 

For the individuals who genuinely need to feel this sensation of movement there is a small tool called a fidget cube or a spinner, which could be used under a table or somewhere out of view of other students so that the Teacher or Tutor will not consider them to be a distraction for other students who do not need the sensation of movement to concentrate.  These tools are inexpensive and can give the same sensation as tapping a foot, shaking a leg or swinging on a chair. 

Spinners
Fidget Cubes

There are many different types of Fidget Cubes or Spinners all available on line at an extremely reasonable cost. 

After using these small tools for  a while it can reduce the need for larger movements but for some individuals these tools can encourage individuals to, over time, stop the need for movement at all.

On behalf of the millions of children who have been shouted at in the past for just this cause, please, give others a chance, understand that they need movement to concentrate, at least until their brain can be trained to do otherwise. 

Thank you


For sufferers of Alzheimer's or Dementia there are also fidget tools, which are called amongst other things, twiddle muffs, you can buy these for men and women as can be seen from the below photographs. These can also help them to concentrate as well as pass many hours of their day away. 

Women's Twiddle Muffs

Mens Twiddle Muffs

On behalf of many individuals who sit all day long with nothing to do, thank you for taking time to read this post

Want better health, then your chemical balance needs you to listen

Medication, Acupuncture, Chinese remedies, Injections, Self medication - and many others are all options for better health, but many of these would not be required if we all listened to the needs of our  'own specific chemical balance'.

Once again we refer back to our old saying ' what happens if you put diesel in to a petrol vehicle? it doesn't run very well! what happens if you put petrol in to a Diesel vehicle? after a very short period of time the vehicle will come to a shuddering stop and the fuel filter and tubes will all need to be cleared or cleaned, similar to our own systems sometimes, we need to flush them out - an uncomfortable process for some, especially if it needs done via the Hospital methods.

Some of the many illnesses caused by the lack of positive foods/liquids being digested or ingested are;


  • Depression
  • Anxiety
  • Alzheimer's 
  • Vascular Dementia
  • I.B.S
  • Indigestion
  • Crohn's
  • Bowel cancer
  • Stomach issues
  • Migraines
  • Feeling permanently bloated
  • Skin irritations
  • Piles
  • Exhaustion
  • Psychosis 



So, why not reduce your health issues or the possibility of any of the above happening to you and start to listen to your chemical balance today and after just a matter of a few weeks start to reap the rewards of better over all health.

Humans are the only animal who buy and consume foods according to what their 'eyes' fancy. A horse, a dog, an elephant and many other birds and wildlife still have the innate ability to utilise 'all animals basic instinct, yet humans have been brain washed by packaging, photographs - just what the producers want, so no matter which way we look at it, what the majority of us eat is purely controlled by the Marketers or perhaps better still by the Artists who create the beautiful photographs on each package. Few consumers actually look at the ingredients, few actually realise the amount of chemicals that are put in to each food available to the human. Very few individuals genuinely realise how brain washed we are to the Stores/ Supermarkets methods of 'how to get their Clients to buy their foods', yet they have ingenious ways of encouraging all to buy 'NEW' products. To summarise all this the majority of humans are 'blinkered' or are being trained, from a young age by the Marketers on what foods to buy - no matter the methods that they utilise in the process. 

Given all the above, sadly, we are also, automatically, training our children and our children's children to automatically assume that this is the only way to buy foods - by the packaging - no matter the ingredients.

Is there therefore that much of a surprise why there is such a massive increase in health issues such as the ones mentioned in the listing above. 




For a moment, let's calculate how long, on average, it takes to shop, as well as the cost, for that, as an example,  quick 'instant Microwave meal'. 

  1. Diesel/petrol to get the the store
  2. The time
  3. The additional things you purchase along with the meal your eyes have decided to buy.
  4. The plastic you have bought along with each article as well as the bag. 
  5. Your time spent in the shop
  6. Your time having a gossip with the people you bump in to along the way. 


Here is an interesting link called 'Grocery Shopping Statistics' 

Ultimately grocery shopping is one of life’s necessary evils — it’s a drain on your wallet and your time but above all often your health suffers because of the type of foods the majority of us are brain washed in to buying! 

Yet, as a simple example, to cook a healthy stir fry, with the correct foods for your system, only  takes approximately 9 minutes. . . . . this is as long as it takes to microwave a 'precooked meal'! the latter of which, nine times out of ten, has many more preservatives in it than the food you can cook in the stir fry for the same amount of time! Now let's add on the time it took you to look at the hundreds of microwaved meals before you finally chose the one you wanted.

A little more information on Microwaved foods: 



  1. More than three billion ready meals were eaten in Britain in 2012
  2. They make up the biggest sector of the UK's £70 billion a year food budget
  3. Food manufacturers carry out little or no preparation of raw ingredients
  4. They buy treated ingredients, mainly frozen or dried, from other companies
  5. Meat, fish and vegetables are kept at sub-zero temperatures for months
  6. But when the food is thawed and cooked it can be marketed as 'fresh'
  7. A ready-meal factory can churn out 250,000 portions a day using 70 different ingredients


Now there's some interesting but perhaps also some frightening information for you! but information that may have triggered your memory from 'foods in the olden days', yes, that's right, the food your Granny used to cook! or maybe even still does, that is if she hasn't been persuaded to buy instant meals by her ' now adult children'! In the olden days if you fell ill, someone would bring you a good healthy pot of homemade soup, or a substantial meal with all natural ingredients in them. 

Our next post will look in to the things we consume from a different angle but in the meantime we will leave you with this photograph to 'digest'! 







Until the next time, thinking what you eat will allow your over all health to improve, so, start to sow the seed for a healthier future for your children and the Processing Factories will have no option but to stop producing foods with a mass of negative chemicals which ultimately are creating an incredibly unhealthy world. 












Monday, 20 June 2016

The main complaints for the Ombudsman - 61% NHS - what could improve this figure . . .

As strong believers in '50/50 communication works every time whether it be for a human, an elephant, a dog, a horse, a sheep, a cat or indeed a cow, we actively try to encourage everyone we come across to use these extremely simple methods. 

This small post has been written to help and encourage others to use it as well and we hope that once you have started using it on a daily basis that many more living creatures will not feel so controlled, threatened or intimidated by the 'negative behavior of human kind whether via voice or physical actions.

This method does not promote; 

  • '100/10 understanding'
  • 'In the face' ordering
  • 'Aggressive' behavior
  • 'Domineering and intimidating conversations'
  • 'Restraint'
  • 'Bribery and corruption'
  • 'An aggressive eye'
  • 'Verbally threatening and loud language'
  • 'Dictatorial leadership, decision making'
  • 'Unhealthy diets'

This method does promote;

  • 50/50 understanding and communication
  • 'Kindness'
  • 'Patience'
  • 'Equal/fair and acceptable' decision making'
  • 'Each individuals latent talents to come to the fore'
  • 'Individual decision making'
  • 'The ability for  all to ask and to communicate in a non threatening way in an acceptable environment.
  • 'Turning negative actions/situations  in to positive actions/situations for all involved'
  • 'Healthy foods for each individual'
  • 'To walk their walk and talk their talk'
The beauty of these simple suggestions is that each of them immediately makes a difference to the suffering individual and once you start to use them on a daily basis, it becomes automatic therefore every individual you come across feels lighter, all thanks to the way you have communicated with them.

So what has an elephant picture got to do with either of the lists above . . . . .  well, it explains it in one, especially for those who would feel intimidated by standing along side such a large majestic creature (n.b. note this person is not standing in front, or behind but at the side - this being the only way that is totally non intimidating for the animal).


Let's just jump back to the human world for a moment, how many families and patients both 'long and short term' feel intimidated by some of the present methods of control used within the Social Care/Health Service or indeed other Professions, or how many patients feel intimidated by one person, or are given medication which often makes them feel intimidated by the methods used? or how many individuals are given medication that actually only freezes/pauses the problem until the medication is stopped rather than succeeding in grasping the issue wholeheartedly, and turning it around towards a more positive long term plan but ultimately in to a healthier future for the individual as an individual.

But the most concerning thing at the moment are the amount of people who feel so intimidated by others and Professions that they are too frightened to complain or just accept the negative behavior as part of the course. With this in mind, if everyone actually complained about the Service being given to their MP's or the Ombudsman's the statistics would probably sit closer to 80% rather than the stated 61%. 

So what other things within similar Professions have you perhaps noticed;

  • An individual not being fed enough
  • An individual being regularly dehydrated
  • An individual regularly having urine infections
  • An individual not being given sufficient personal hygiene attention
  • An individual constantly having heel/bed sores
  • An individual feeling frightened of Staff or one Member in particular 
  • An individual who suddenly become introverted
  • An individual suddenly becoming tearful.
To be honest, the list is endless and we are sure you could add many more things to this.

Whether an individual is in short term or  long term care, elderly or young each have a right to be treated with respect, and that right should be carried out no matter what. 

However, sadly, this does not happen all the time and that is when the going gets tough for Families and Friends as well as the person who is at the core of the temporary or full time issue.

In the first instance we would like every one to use and encourage our suggestions within others:

The only way forward for a happier life for all is ;

  • 50/50 understanding and communication
  • 'Kindness'
  • 'Patience'
  • 'Equal/fair and acceptable' decision making'
  • 'Each individuals latent talents to come to the fore'
  • 'Individual decision making'
  • 'The ability for  all to ask and to communicate in a non threatening way and in an acceptable environment.
  • 'Turning negative actions/situations  in to positive actions/situations for all involved'
  • 'Healthy foods for each individual'
  • 'To walk their walk and talk their talk'
  • 'TLC'

However, if you feel you would like to complain about an issue we are going to insert a few links, some are lengthy to read but worth it. However, your first port of call should with be your own family or Carers to discuss and note down issues at hand. From there, with concrete evidence attached, create a letter or make an appointment with the Department the suffering individual is under or with. Await to see how they take the issues forward. If you are still unhappy about the situation then you could assess the following links. 

At the end of this attachment there is a list of addresses if you feel a complaint is needed against a unit for any form of mal-practice . . http://www.gov.scot/Resource/0048/00484268.pdf

or if you don't feel the service above has been acceptable try this one . 
http://www.nhslothian.scot.nhs.uk/YourRights/ComplimentsConcernsComplaints/Documents/NHSLothianMakingAComplaint.pdf

on top of these we would suggest you also write to your MP


Then an additional place to put a complaint in would be http://www.spso.org.uk/

Finally some interesting reading on the Ombudsman  http://us6.campaign-archive1.com/?u=41e2e1d946df995fb6cae48d9&id=70d22905dc

On behalf of many who will struggle in the future unless some of the present systems change, or for those who are presently struggling, we all need to help make the world more accommodating for all. However, sometimes, sadly, this means that we need to put in some form of a complaint. 


Above all, please remember, everyone has had a past, has an interest, they have, like us all, worked hard, and each are happy to see and talk about the happy times and to be treated as you would like to be treated.

Living creatures are like a wall,
that sometimes crumbles and falls.
 It takes a builder, water and mortar 
to build that wall back up, 
but for a living creatures' fall
it takes a heart, silence and kindness, that's all. 



Thank you for taking time to read this post. 






Saturday, 2 May 2015

More on Dementia and Alzheimer;s . ..




For those of you who know this Site, you will be aware by now that we are firm advocates of letting silence speak for all who are experiencing communication issues.

Having worked with sufferers of Dementia and Alzheimer's for a number of years now our eyes have been opened to many different levels of understanding. Some of these levels have been beautiful and so humbling, others we have been asked to intervene with a view to making the sufferer's life more at ease and at peace for all family members resulting in the frustration being transferred on to a positive note by our techniques used. Although these techniques may result in being something different for each person the basis is the same and has never failed us to date.

However, there have been the odd times where we have felt that the human race has failed on some of the individuals lives and all we have been able to do is to make the Sufferer of Dementia or Alzheimer's time with us as enjoyable and hassle free as possible. Sometimes, there have been times that we have hated leaving them but have tried hard to let family Members have a better understanding of the individuals stage of mental ability and coping mechanisms.

However, on the odd occasion familiarity can breed contempt and it can seem that each person almost fuses off each other. Sometimes just not being able to put a knife in the right place can trigger a gasket being blown, or setting the table in the wrong way, or putting a clean pan in the fridge! Repeatedly experiencing these errors almost puts a black cloud on the whole of the house to the point that for an outsider the atmosphere can be cut like a knife. At other times, it's when the door closes and we are away when the fuses blow. However, we have learnt, thanks to years of experience, that it is easy to tell if there have been fuses flying the night before as the Sufferer usually shows various signs, perhaps being overly tired, or more confused than normal, or perhaps soiling or more soiling than usual.

However, this is all, to a point, totally understandable and often is not helped due to the lack of sleep that each Member of the household may be suffering from, so where possible try and encourage all parties to catch an extra few hours sleep whenever possible or relieve the situation by interacting with the Partner, perhaps taking them out for a cup of tea to soften them to the new stages of the Dementia/Alzheimer's. But be sympathetic to both. If you are at all concerned about what might be going on behind closed doors then please contact the appropriate people, perhaps the Sufferer's G.P or the Social Work department or your local Dementia Group for advice.

It is also essential that each person is given a break, and that where possible, each person in the household gets away from the home on a daily basis or at the very least every other day.

We have known situations where one of the 'non suffering' partners have been of a 'controlling nature' almost living a separate life from the sufferer, getting up at different times of the day, eating breakfast at a different time of the day, waking up and going back to bed at different times of the day, rarely interacting at all, infact almost so focused on their own needs that the sufferer of Dementia/Alzheimers is not welcomed any where within the house while they are awake. It is these situations that are not only hugely unfair but also hugely unsafe both psychologically and physically but leaves the various stages of dementia extremely difficult to cope with for not only the sufferer but also the partner (if you can call it a partnership that is).

Thankfully, in these instances we have managed to be part of an extremely caring team who dedicate a minimum of 4 plus hours a day to the Sufferer making sure that they are 'fairly understood and stimulated, with activities' suitable to them and that they have gone back ready for their nap, therefore alleviating the 'partner' from having to socialise with the sufferer! as much as leaving them has torn our hearts each time, it is something that we had to cope with and after a fairly short period of time the sufferer then realised that she/he always had someone going in on a daily basis, therefore giving them something to look forward to in the early stages but also instilling familiar voices to feel at ease with as the stages progress.

Some instances, sadly, people have set up a 'room' outside, for example, in a potting shed or an extension with known things around them where the sufferer spends her/his day, mainly so that the Partner does not get disturbed!

In these instances, when an accident happens, for example a fall or further T.I.A's rarely does the Partner either know or even want to accompany the Sufferer to hospital, perhaps out of fear of picking up a bug themselves or because of the long wait that is often experienced while the Sufferer is being admitted to hospital, or perhaps they just 'don't do' hospitals.

Let's take a moment to think what it must feel like for a Sufferer having to visit hospital on their own. As you know, we are all asked a hundred and one questions during admittance, most of these are difficult enough to answer at the best of times, but for a Sufferer of Dementia/Alzheimer's or any form of confusion, this experience can feel intimidating, threatening and extremely frightening leaving them often feeling even more confused than they were before. This kind of experience can also trigger further T.I.A's. So given this information is it indeed fair to ask any Sufferer to go on their own to a foreign environment? the answer has to be No. So, this is another stage where a good team of Carers can step in, especially if there are no immediate family around.

While on the topic of family, this experience can also be emotionally upsetting for family Members, no matter how old. It's out of the known comfort zone for not only them but for the Sufferer as well, it's instant realisation on how far along the Dementia Trail the Sufferer is, when before, being in a known environment the reality can often be masked.

Here are a few handy hints

  1. Always make sure you have a few Carers who totally understand the level of the Sufferer 
  2. Always be prepared for out of the blue tears, so carry a hanky at all times 
  3. Always carry some form of known relaxation music that the Sufferer likes, as well as one that will calm down family members and yourself
  4. If a hospital visit is necessary explain the level of Dementia to any Nursing Staff in the hope that the Sufferer does not have to be asked the many, many questions, as this just confirms to the Sufferer that they are not doing that well and can cause more confusion as well as potentially further T.I.A's
  5. Leave a diary for all who care for the Sufferer so that they can write information such as Activities participated in and on which level 1 - 3, or where you went for lunch and what the Sufferer ate
  6. Make sure the Sufferer drinks enough fluids and as their stages increase perhaps consider reducing foods that are more difficult to digest. 
  7. But the most important thing of all is to try your hardest to be on the same level as the individual you are with. Each and every person has a heart, although sometimes locked it is easy to find the key to unlock that precious heart.
Additional Links 





There are additional links within the above . . 

We hope these posts will help to ease someone's life who suffers from Dementia/Alzheimer's.



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